On November 1, 2010, our daughter, Ellis Rose, was diagnosed with Cystic Fibrosis at 7 days old. Our family is now committed to finding a cure for this illness that 70,000 people around the world suffer from. The first words our doctor said to us during our first visit to the CF Clinic were "We are very hopeful for Ellis". Hope is a word we hear a lot in the CF community, and it is the best way to sum up how we feel as we continue our fight against CF.
Friday, April 22, 2011
Ellis Update
Today we went to Ellis' pediatrician for her six month check up. Yes, she will be six months on Monday...how time flies!!! Before any doctor's visit, Levi and I always find ourselves asking each other "Did we feed her enough?" or "Is she putting on enough weight?".
Weight is a major concern for those with cystic fibrosis. We do our best to regulate the amount of enzymes she takes with each feeding so she will absorb the most nutrients possible. Ellis now eats four times a day, and one of those feedings usually consists of a mere four ounces of formula, which had us thinking she may not be getting enough.
Well, we are doing something right because Ellis is weighing in just over 16 lbs putting her in the 58th percentile! The doctor told us to keep doing what we are doing. It is nice to be reassured that we are following our daughter's signals correctly and are giving her the nutrients and calories she needs to grow up as the healthy little girl she is. Mommy and daddy are proud of you monkey!!!
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yeah!!!! Thats awesome! you both are great parents, Ellis is so lucky:)
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