On November 1, 2010, our daughter, Ellis Rose, was diagnosed with Cystic Fibrosis at 7 days old. Our family is now committed to finding a cure for this illness that 70,000 people around the world suffer from. The first words our doctor said to us during our first visit to the CF Clinic were "We are very hopeful for Ellis". Hope is a word we hear a lot in the CF community, and it is the best way to sum up how we feel as we continue our fight against CF.
Monday, May 2, 2011
May is Cystic Fibrosis Awareness Month!
To highlight the growing need for awareness about cystic fibrosis, the CF Foundation recognizes the month of May as National Cystic Fibrosis Awareness Month. Our family recognizes the importance of raising awareness about this illness as we get closer and closer to finding a cure.
Consider these statistics, provided by the CFF:
Approximately 30,000 children and adults have CF in the United States.
More than 10 million Americans are symptomless carriers of the defective CF gene.
The disease occurs in one of every 3,500 live births of all Americans and about 1,000 new cases of cystic fibrosis are diagnosed each year.
Please help us raise awareness! You can do so by sharing our story with a friend or by posting the link to our blog on facebook. Thank you all for your support and helping us get the word out there!!!
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