Roe Van Epps is a 41 year old woman with cystic fibrosis. She was one of the lucky few who participated in the clinical trials for VX-770, a drug that directly corrects the G551D CFTR mutation. This is one of the same mutations that Ellis has. Below are a couple videos of Roe expressing her emotional and physical changes after she started taking VX-770.
In this first video, Roe is reading her thank you letter to the people at Vertex who made VX-770 possible.
In this next video, Roe shares the physical changes she experienced after she started taking VX-770.
Lastly, Roe talks about her future...
We all know that this drug is going to be a game changer for Ellis and all those with CF, but hearing Roe share her personal experience really hits home. The hope keeps getting stronger and stronger!!!
On November 1, 2010, our daughter, Ellis Rose, was diagnosed with Cystic Fibrosis at 7 days old. Our family is now committed to finding a cure for this illness that 70,000 people around the world suffer from. The first words our doctor said to us during our first visit to the CF Clinic were "We are very hopeful for Ellis". Hope is a word we hear a lot in the CF community, and it is the best way to sum up how we feel as we continue our fight against CF.
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