I thought this was such a great idea to raise awareness about CF and the Claire's Place Foundation! This foundation was created in honor of Claire, who is 13 and continues her tough battle with CF. Their mission is to heighten public awareness and improve the quality of life for the families CF affects by providing education, life skills, inspiration, and positive support.
Claire is up front in the orange shirt. :) Fun!
On November 1, 2010, our daughter, Ellis Rose, was diagnosed with Cystic Fibrosis at 7 days old. Our family is now committed to finding a cure for this illness that 70,000 people around the world suffer from. The first words our doctor said to us during our first visit to the CF Clinic were "We are very hopeful for Ellis". Hope is a word we hear a lot in the CF community, and it is the best way to sum up how we feel as we continue our fight against CF.
No comments:
Post a Comment